美国HIV数据库计划启动
本周四国家卫生研究所正式宣布资助艾滋病电子数据库计划，这个数据库将被用来跟踪艾滋病患者的治疗和效果。九月份数据库被获准收集实时临床数据。目前数据库已经收集了大约15000名患者的信息。阿拉巴马大学的Michael S. Saag教授目前负责患者的数据收集工作。他说，以前大多数诊所并没有使用标准化的表格收集和共享数据，但是两年前开始建立的新数据库已经设计了统一的标准表格来改进患者信息的共享。研究者说这项计划能够使他们以一种更广的交互式视角研究患者人群。
以前建立的艾滋病患者数据库只服务于某一个健康诊疗中心，而现在通过国家级的数据库把各个中心实现了数据共享，这可以帮助研究人员更好的研究不同的艾滋病人群，Brigham艾滋病研究所和女性病院的主任Daniel R. Kuritzkes在电邮中写道。
哈佛医学院附属Fenway社区健康诊疗中心，是参与组建共同电子数据库的七大社区点之一。中心的现任院长兼执行总裁Stephen L. Boswell说，目前我们在正在跟踪的艾滋病患者大约有1300名。除了病人常规的诊疗资料之外，还有生活质量的评估和血样也被采集以供以后分析之用。身兼哈佛医学院医学科副教授的他评价此计划说，我们如此兴奋，因为它将会是一个推进艾滋病治疗研究的强有力的工具。
HMS Starts HIV Database
Published On Friday, October 13, 2006 1:52 AM
By SHOSHANA S. TELL
Contributing Writer
Fenway Community Health, a health clinic affiliated with Harvard Medical School, is one of seven sites now participating in a new collaborative electronic database that will be used to track therapies and outcomes for patients with HIV and AIDS.
The new initiative, which was awarded a grant from the National Institute of Health in September, has allowed for the collection of real-time clinical data, said University of Alabama Professor Michael S. Saag, who is leading the effort to organize the data on patients.
The grant was officially announced Tuesday.
According to Saag, most treatment clinics generally do not collect and share data in a standardized form, but the new database—which was launched over two years ago—has established uniform standards that have improved the sharing of patient information.
There are currently about 15,000 participants being tracked in the database, Saag said yesterday.
Researchers say the new measures will enable them to look at a broader cross section of patients.
While previous efforts to collect HIV patient data have been limited to single health centers, the linking of clinics through a national database will help researchers better study a diverse HIV population, wrote the director of AIDS research at Brigham and Women’s Hospital, Daniel R. Kuritzkes, in an e-mail.
About 1300 of these patients are currently being tracked at Fenway Community Health, said its president and CEO, Stephen L. Boswell.
In addition to routine patient care data, quality of life measures and blood samples are also being collected for later analysis, said Boswell, who is also an assistant professor of medicine at Harvard Medical School. He added that because the data involves thousands of patients, small increases in certain types of problems can be detected more quickly, so the database will serve as a kind of sentinel for changes in the epidemic.
“We’re very excited that this will be a very powerful tool in advancing treatment for people with HIV,” he said.
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